March 2, 2019
Well we've had a great run. I can't remember the last bad flare we've had. I found an old post from August that stated we had had a few great weeks so I know it's been at least that long. Now we're getting somewhere.
I thought when things got better I would see it coming. Thought I'd know. Figured I'd be able to point to some new treatment or strategy and say, "Yes! This is what is going to make a difference. Found it!" and then I'd get to watch her health reveal itself in all it's glory. It wasn't at all that way.
I only knew her health had improved when I looked back. As each month passed without a flare I began counting - 1 month, 2 months, 3 months, 4......five potato, six potato, can we get one more?
Oh I'm NOT cocky though. No way. No one who has lived this life would dare. Oh in the beginning I was. Poor, naive, PANDAS PANS Mama. "Hey everyone! I can't believe all she needed was a simple probiotic! She's been perfectly healthy for weeks! Can you believe it? All this time and a little gut health made it all go away" Crash! Bang! Boom! And all the queens horses and all the queens women, couldn't put my child back together again. I probably fell off that wall a few times in all honesty. In fact, this may be the first time I've been humble and super quiet about it. Haven't even written many blog posts about it.
So, this has been an unusual time. Quietly taking it day by day. Working through some rough spots because it hasn't all been sunshine and roses. We'll have a couple of nights here or there when fears and a touch of OCD come to play. A weekend here or there when she's super agitated and emotional. The first few times it happened I panicked and threw everything from my flare protocol at her. Each time she was better within a day or two.
Only recently did I start letting her try to work through these bumps without too much intervention. Maybe just a little extra immune or allergy support.
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Hmmmmm....I didn't see this coming.
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I was going to write about taking our nutritional support program to the next level to get her over a little hump she seems to be stuck at. I've noticed she's been more unfocused, hyper, sensitive, and having some fears and minor little OCD stuff. I was thinking I needed to get her going with a little more methylation support but now....
Oh crap! I haven't been giving her the whole flare protocol at the first sign of symptoms and NOW I'm seeing other stuff creeping in. Stupid. Stupid. Stupid. I did it again. Why do we keep trying to act like our kids have healthy functioning immune systems even in the face of growing symptoms.
Strength. Hope. Love.
p.s. don't get cocky
