New gains

Monday, November 7, 2016

We continue to be filled with hope as we see in our daughter things we have not seen in months, and maybe even years. We've started a biofilm protocol of enzymes and antimicrobials. Fighting the invisible invaders we are bringing her home. Cerebral folate deficiency is an issue and one of our latest battlefields so a little b12 in the last couple of days might be making even more of a difference. Cleaning up the gut, strengthening the immune system, balancing out the supplements. We are in a beautiful "tweaking" phase, carefully watching and holding everything as steady as we can while we make minor changes.

Precious moments of recovery are now drowning out the horrible snapshots of grief this illness has brought. Memories frozen in time, stand firmly in my mind with all the amazement and joy of the most important days of my life; marriage, birth, and the day Amelia found healing. So many days. The day we crimped her hair, the day she wore new sneakers, the day she ran off without clinging to me to play at a party, and now grandma's 75th birthday. Amelia looked healthier, smiled more, and even ordered her own food at the restaurant.  Music to my ears, her chitter-chatter as she laughed, and enjoyed Grandma's 75th birthday will ring in my memory for years to come.

All those little big moments to cherish will be right up there with her first steps, first words, first day of school. There is always strength, love, and hope.